I recently met a Young Professional for a coaching appointment over dinner and to my surprise, I saw another Young Professional who had attended a home group we hosted during the time in our lives when Jen was really sick.
Baxter had moved out of the area a few years ago to take another job but recently moved back to Orange County. Though we had exchanged some texts and engaged on Facebook, we hadn’t actually had an opportunity to connect personally since she moved back to the area.
Having been around during the time Jen was struggling with her health, Baxter saw first-hand the effects of the disease and medications Jen was taking. Naturally Baxter was curious about how Jen was doing.
For the past few years, as I’ve been asked frequently about Jen’s health, I’ve been able to share about how well Jen is doing and how the condition that afflicts her (Vasculitis) is under control, thanks to the care she’s been receiving by her doctors at UCLA.
In fact, early last year, I wrote about how Jen’s condition was considered to be in remission and her doctors wanted to take her off her medication completely, which they did in May of last year (see April 26, 2019 post on Lowedown.com).
Unfortunately though, I was not able to give such a positive and glowing response to Baxter in that moment, as Jen has recently suffered a setback in her health.
Back in December, Jen received the results from some blood work which indicated elevated levels in her kidney. Jen has only one kidney so this was very concerning to her and her doctors. Shortly after Christmas, Jen experienced elevated potassium levels which forced her to spend the night in the hospital.
Last week, Jen made several trips to UCLA to meet with her nephrologist as they try to figure out what is happening with her kidney. The good news is that the ultrasound and CT scan that she had showed no abnormalities in her kidney. However, some of the most recent bloodwork came back indicating that the vasculitis that has been in remission for the last four years has returned.
We suspect that this is the reason for the elevated levels in her kidney, as these same symptoms were present back in 2014 when the vasculitis first presented itself.
To say there is discouragement with this development would be a huge understatement. Jen is not looking forward to going back on Prednisone as the reminder of the damaging effects it had on her body are pretty painful.
We are hoping and praying that because we know what we’re dealing with and Jen’s doctors are extremely competent that the path to stabilizing this “flare” will be quicker and much less traumatic than before.
We don’t know why we continue to be faced with these health challenges, but we know God is good and He has blessed us in so many ways. We would greatly appreciate your prayers.
Specifically, we are praying for the following:
- We are praying that this vasculitis flare would be quickly stabilized
- We are praying that Jen would not have to be on Prednisone for very long.
- Lastly, we are praying that Jen would not have to be admitted to the hospital for ongoing treatment but that whatever treatments are prescribed could be done on an outpatient basis.
We are grateful for you, our friends, whose prayers and encouragement have sustained us. Thank you for your ministry in our lives!
4 Replies to “A Health Setback”
I so admire both of you. Wr will praying for Jen and continue to pray for the boys. 🙏🙏🙏
Hi guys! Mom and I will say extra special prayers for Jen in these challenging days. You all are such an inspiration to us and we love you all! We continue to pray for you and the boys! 🙏🙏🙏❤️❤️❤️
I completely understand this. I have been dealing with health issues my entire life, and I think my vasculitis began in 2008, but it didn’t get severe until 2013. It took until 2015 to get a diagnosis. And 2016 to see a better specialist to get the diagnosis again so that people would believe it. It’s a constant living with unknowns about where you will be next year, next month, the next week, the next day, or the next hour. I’m so sorry. 🙏🏽
Yes Gladys….there are a lot of unknowns. We learned that vasculitis is pretty rare and the average doctor has very little experience with it. It often gets misdiagnosed as pneumonia, which is exactly what happened with my wife. I’m thankful for the experts my wife is able to see who are very experienced with this disorder and are able to give the best care possible. Even still, nothing is full-proof and there’s still a lot that’s not known about this disease. Thanks for your reply!
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