(NOTE: this is a follow up to my earlier posts on 10/13 and 10/22)…
Click here to read the pdf version of the Lowedown
Recently, I was watching an episode of Dancing with the Stars. Jen and I enjoy watching the transformation that takes place in the lives of people who have no dancing experience and yet are able to learn to perform sophisticated dance routines at a high level.
The theme of this particular week was “your most challenging year”. One contestant mentioned the year that he went to jail. Another contestant mentioned the year that her dad passed away. Still another contestant mentioned being bullied as a teenager.
I think I can confidently say that if I were on that show and had to respond to the theme of that week, that this year would definitely be listed as our most challenging year.
It’s been a six month journey in getting sick, trying to diagnose the problem, getting a diagnosis and then beginning treatment. Last month, Jen had just finished 4 weeks of chemo-therapy infusions that were designed to suppress her immune system and put her vasculitis into remission.
Everything seemed to be going well. Jen was responding well to the treatment and the blood work indicated that her kidney functioning, which had been declining over the summer, was beginning to stabilize.
But about 2 weeks after her last infusion, Jen started to experience some symptoms of shortness of breath, accompanied by some low grade fevers. When we met with her rheumatologist, her initial words were, “this is not good.” She was concerned that Jen might have an infection and with a compromised immune system, that could be extremely dangerous.
Jen was admitted to the hospital and remained there for 10 days. Tests indicated that there was no infection, which means that what Jen was experiencing was a recurrence of her vasculitis. After all the treatments that she had received, this was a bit of a bummer.
To combat this vasculitis flare, Jen had to be given very high doses of Prednisone intravenously for several days. Once the doctors were confident that the vasculitis flare was under control, it took them several days to taper Jen down to a Prednisone dosage that was low enough to take at home.
Jen has now been home for a week. The good news is that her kidney function, blood work and chest x-ray all look good and for now the vasculitis symptoms seem to be under control. The hard part is that Jen is on a higher dose of Prednisone than when she first started treatment in July, so in some ways, it feels a bit like treatment is starting completely over at the beginning.
Jen’s rheumatologist tells us that the treatment phase for this disease will likely last a year. After that, if there are no other setbacks, we can move into a maintenance phase. Maintenance would require Jen to take low doses of an immunosuppressant drug in order to keep the vasculitis from recurring.
During this challenging time, we’ve been overwhelmed by the love and support from family, friends and co-workers. Thank you for praying for us and for serving us in so many ways, whether through cards, notes of encouragement, timely meals for our family or an additional financial gift. We are so grateful for you.
We would greatly covet your continued prayers for us as we continue to navigate this journey the Lord has us on.
Specifically, pray for Jen to remain healthy as her immune system will be compromised until well after the first of the year. Pray also that there would be no recurrence of the vasculitis as Jen continues to be tapered off of Prednisone, which has many undesirable side effects.
Pray too for us as we try to balance our desire to build on our new ministry while continuing to deal with Jen’s ongoing disease and recovery.
Thank you so much for standing with us. We are eternally grateful!